Patients' NHS records could be shared with private firms http://www.bbc.co.uk/news/uk-16021240

Why not? Let everyone know everything about us

They have tried that loosing laptops and data keys, now it can be sold it might be taken more care of

Under the plans, NHS records would be made anonymous, but it is not clear whether private firms would have to pay to access them.

We'll have to see.

David Cameron eyes NHS-life sciences partnership http://www.bbc.co.uk/news/uk-16026827

Everyone 'to be research patient', says David Cameron http://www.bbc.co.uk/news/uk-16026827

GPC tackles ministers on safeguards for patient data processed abroad

http://www.pulsetoday.co.uk/newsarticle-content/-/article_display_list/13142511/gpc-tackles-ministers-on-safeguards-for-patient-data-processed-abroad

Fine after Brighton hospital's hard drives stolen, http://www.bbc.co.uk/news/uk-england-sussex-16502602

will not be able to sell the data if it has already reached the market place

Liverpool hospital health worker read in-laws' files, http://www.bbc.co.uk/news/uk-england-merseyside-16533431

Soaring numbers of data handling breaches revealed

http://www.pulsetoday.co.uk/newsarticle-content/-/article_display_list/13383669/soaring-numbers-of-data-handling-breaches-revealed

Computer Sciences Corporation could retain £1bn in health contracts,

http://www.guardian.co.uk/society/2012/mar/06/computer-sciences-corporation-retain-health-contracts

Summary Care Record a year behind schedule, DH warns

http://www.pulsetoday.co.uk/newsarticle-content/-/article_display_list/13728350/summary-care-record-a-year-behind-schedule-dh-warns

Around 25 civil servants are being reprimanded each week at the Department of Work and Pensions for breaching rules governing its vast database, figures show

http://www.telegraph.co.uk/news/uknews/law-and-order/9265732/Civil-servants-caught-looking-at-private-files-in-personal-data-breaches.html

Who will persuade hospitals to adopt the NHS information strategy?

http://www.guardian.co.uk/healthcare-network/2012/may/28/nhs-information-strategy-power-of-information

NHS trust fined record £325,000 for auctioning off online computer hard drives filled with HIV patients' details

Read more: http://www.dailymail.co.uk/health/article-2153285/NHS-trust-fined-record-325-000-auctioning-hard-drives-filled-HIV-patients-details-online.html#ixzz1waDPvmpU

NHS trust fined £175,000 for 'troubling' data security breach

http://www.guardian.co.uk/uk/2012/aug/06/nhs-trust-fined-data-security

NHS 'cover-up' over lost cancer patient records
Thousands awaiting treatment were kept in the dark for five months when data disappeared

http://www.independent.co.uk/life-style/health-and-families/health-news/nhs-coverup-over-lost-cancer-patient-records-8191066.html

Thousands of English NHS patient records have been shared with 18 of Britain's biggest pharmaceutical firms since the launch of a new clinical research scheme earlier this year.

http://www.telegraph.co.uk/health/healthnews/9636510/NHS-patient-data-shared-with-industry.html

NHS lost 1.8 million patient records in a year
More than 5,000 confidential patient records are being lost by the NHS every day, according to new figures.

http://www.telegraph.co.uk/health/healthnews/9640168/NHS-lost-1.8-million-patient-records-in-a-year.html

How to secure patient trust in electronic record systems
A breach of personal data could do considerable damage, so trusts must build patient privacy into NHS IT systems

http://www.guardian.co.uk/healthcare-network/2012/nov/05/secure-trust-electronic-patient-records

Patient data in the NHS
Find out what our panel of experts said about the future of patient data in the NHS, including boundaries of consent and the use of data for relevant trials

http://www.guardian.co.uk/healthcare-network-nihr-clinical-research-zone/patient-data-nhs-live-discussion-roundup

More than one in three people have had their medical details uploaded onto a central database accessible by healthcare professionals across the country, many without their knowledge, it has been claimed.

http://www.telegraph.co.uk/health/healthnews/9760563/One-in-three-have-online-medical-record-many-without-knowledge.html

Millions of confidential medical histories will be shared between hospitals and GPs, despite fears that patients’ privacy could be breached.

http://www.telegraph.co.uk/news/politics/9804402/Privacy-fears-as-Jeremy-Hunt-orders-health-records-to-be-shared-throughout-NHS.html

Donated genetic data 'privacy risk' http://www.bbc.co.uk/news/health-21056647

http://www.pharmatimes.com/mobile/13-01-17/Hunt_unveils_IT_project_for_paperless_NHS.aspx

PharmaTimes - Hunt unveils IT project for paperless NHS
Selina McKee

Health secretary Jeremy Hunt has showcased ambitious plans for a paperless National Health Service by 2018, saving lives and the NHS a potential £4.4 billion a year.

In a speech to think-tank Policy Exchange last night, Hunt noted that patients should have compatible digital records so that their health information can be accessed anywhere in the health and social care system with just the touch of a button.

Under the plans, patients' medical records will be online by March 2015, and be part of a fully connected health and social care service by 2018.

The move comes with the publication of a study by Price Waterhouse Coopers into the better use information and technology, which found that the greater use of text messages, electronic prescribing and electronic patient records could boost patient care, free up health professionals to spend more time with patients, and save nearly £4.5 billion a year.

"The NHS cannot be the last man standing as the rest of the economy embraces the technology revolution," Hunt said, noting that it "is crazy that ambulance drivers cannot access a full medical history of someone they are picking up in an emergency – and that GPs and hospitals still struggle to share digital records".



However, for hospitals to make information digitally and securely available by 2014-15, the quality of information and data integration must be improved and this critical area of business has long been ignored, one expert claims.

Mikko Soirola, vice president of data integration specialist Liaison Technologies, said that while the "savings potential of going digital is undeniable", in order to release the maximum benefit the "data quality has to be of the highest order and data integration across the entire supply chain has to be sorted".



But, he points out, there are few NHS organisations which have a dedicated position of data manager. "Which means no one checks if organisational data is correct and accurate…The sad fact is that if you have poor data to work with from the start, you will never maximise your return or achieve best practice" .

Privacy fears

And critics of the move also fear that patients' privacy could be at risk.

"The Department of Health needs to be absolutely clear who will hold our medical records, who can access them and reassure patients that their privacy will not be destroyed in another NHS IT blunder," commented Nick Pickles, director of campaign group Big Brother Watch.

"There is a real risk that if patients aren't assured that this scheme is fully secure then people will stop sharing information with their doctor and that could be extremely dangerous for care," he warned.

Also, previous attempts at improving NHS IT have been disastrous; Labour's ill-fated programme crashed and burned in 2011 along with £6 billion of taxpayer's money.

Learning lessons

“Previous attempts to crack this became a top down project akin to building an aircraft carrier," the health secretary said, adding: "We need to learn those lessons – and in particular avoid the pitfalls of a hugely complex, centrally specified approach".

As such, under the coalition's plans, clinical commissioning groups will be able to design their own IT systems, as long as they fit with a national set of standards enabling them to communicate with each other.

Tim Kelsey, National Director for Patients and Information in the NHS Commissioning Board, has welcomed the "challenge to unleash the power of information and technology for patients and those who serve them".

"We are committed to transforming transparency and participation in the NHS - the digital data revolution is key to improving outcomes and putting patients and carers more in control," he said.

Many hospitals not sharing crime data, audit shows http://www.bbc.co.uk/news/health-21266409

Big brother to log your drinking habits and waist size as GPs are forced to hand over confidential records

http://www.dailymail.co.uk/news/article-2272166/Big-brother-log-drinking-habits-waist-size.html#ixzz2JmZlvBme

Why is the NHS still using snail-mail?
Email between patients and doctors would be cheaper and quicker, so why isn't it being used, asks the Patient from Hell

http://www.guardian.co.uk/healthcare-network/2013/feb/18/nhs-letters-email

Secret NHS plan to share personal records

http://www.telegraph.co.uk/health/healthnews/9960728/Secret-NHS-plan-to-share-personal-records.html

Data-sharing 'good for patients' http://www.bbc.co.uk/news/health-22309090

Patients to be given 'veto' over their data being shared from GP records

http://www.pulsetoday.co.uk/your-practice/practice-topics/it/patients-to-be-given-veto-over-their-data-being-shared-from-gp-records/20002754.article#.UXxLV0pIRg8

£140 buys private firms data on NHS patients
Bupa approved to access sensitive medical records as campaigners question patient consent for release

http://www.guardian.co.uk/technology/2013/may/17/private-firms-data-hospital-patients

Doctors should be able to veto treatment data until 'happy' with it, say surgeons

http://www.telegraph.co.uk/health/healthnews/10120098/Doctors-should-be-able-to-veto-treament-data-until-happy-with-it-say-surgeons.html

Name surgeons who block performance data - Jeremy Hunt http://www.bbc.co.uk/news/health-22899448

Death data 'not good enough to spot poor surgeons' http://www.bbc.co.uk/news/health-23178379

The 18,000 cancer care records lost every year: One in nine patient files missing

http://www.dailymail.co.uk/health/article-2387032/18-000-cancer-patients-medical-files-lost-year-suffer-humiliation-nurses-poll-finds.html#ixzz2bYgXZTjr

Jeremy Hunt plans sale of confidential patient medical records to private firms

http://www.telegraph.co.uk/health/healthnews/10250585/Jeremy-Hunt-plans-sale-of-confidential-patient-medical-records-to-private-firms.html

NHS IT system one of 'worst fiascos ever', say MPs http://www.bbc.co.uk/news/uk-politics-24130684

GPs threaten to boycott 'Big Brother' NHS database which would force them to send confidential patient records to private firms
General Practice Extraction Service (GPES) is pet project of Health Secretary Jeremy Hunt
GPs say NHS England has failed to tell patients about ‘care.data’ scheme or to promote it properly


http://www.dailymail.co.uk/news/article-2428211/GPs-threaten-boycott-Big-Brother-NHS-database.html#ixzz2fcLGlUpC

NHS Greater Glasgow and Clyde fails to fix IT problem http://www.bbc.co.uk/news/uk-scotland-glasgow-west-24361442

Massive DNA volunteer hunt begins http://www.bbc.co.uk/news/health-24834375

Electronic prescribing 'patchy' in NHS hospitals http://www.bbc.co.uk/news/health-25018136

Fears grow over open access to patient records
Details from a database of patients' conditions, treatment and medical histories could even be sold to private companies

http://www.theguardian.com/society/2013/nov/24/fears-grow-open-access-patient-records

How can health boards ensure digital patient records remain confidential?
As more staff have access to digital records, health boards must have measures in place to reassure patients

http://www.theguardian.com/healthcare-network/2013/dec/06/health-boards-digital-records-confidential

Patient data to be collected from GPs http://www.bbc.co.uk/news/health-25588544

40 per cent of GPs plan to opt out of the NHS big data sweep, due to a lack of confidence in the project

http://www.independent.co.uk/life-style/health-and-families/health-news/40-per-cent-of-gps-plan-to-opt-out-of-the-nhs-big-data-sweep-due-to-a-lack-of-confidence-in-the-project-9083806.html

Why your health secrets may no longer be safe with your GP
The NHS wants to share patient information on a huge database. Has government learned nothing from the privacy debate?

http://www.theguardian.com/society/2014/jan/26/health-secrets-not-safe-with-gp

Benefits of NHS data sharing outweigh potential risks
The prize that care.data offers is far too great to forfeit because of privacy concerns

http://www.theguardian.com/healthcare-network/2014/jan/27/nhs-data-sharing-benefits-risks

Can open data improve GPs' take-up of innovations?
New report examines doctors' engagement with promising innovations in drugs, technologies and practice

http://www.theguardian.com/healthcare-network/2014/jan/29/open-data-gps-innovations

We now trust no one with our data – not even our doctors
The Edward Snowden revelations could prove bad for our health, thwarting a vital NHS scheme to gather clinical information

http://www.theguardian.com/commentisfree/2014/jan/31/nhs-medical-data-trust-doctors-edward-snowden

GPs revolt on patient records: Growing anger at NHS plan to harvest private data

Confidential records will start to be extracted next month by health officials
NHS insists data is to identify poor care - but it could also reach insurers
One GP said 'bullying' to co-operate with officials is akin to Stalinist Russia


http://www.dailymail.co.uk/news/article-2552651/GPs-revolt-patient-records-Growing-anger-NHS-plan-harvest-private-data.html#ixzz2sXiHEI8l

Patient confidentiality ‘to be breached by police’: NHS database to be made available to investigators, claims former shadow Home Secretary David Davis

http://www.independent.co.uk/life-style/health-and-families/health-news/patient-confidentiality-to-be-breached-by-police-nhs-database-to-be-made-available-to-investigators-claims-former-shadow-home-secretary-david-davis-9113403.html

'Crisis of confidence' in NHS database, warn GPs

http://www.telegraph.co.uk/health/healthnews/10634539/Crisis-of-confidence-in-NHS-database-warn-GPs.html

Adults 'unaware of NHS data plans' http://www.bbc.co.uk/news/health-26187980

Giant NHS database rollout delayed http://www.bbc.co.uk/news/health-26239532

Critics of giant NHS database 'are scaremongering' http://www.bbc.co.uk/news/health-26277866

The NHS plan to share our medical data can save lives – but must be done right
Care.data, the grand project to make the medical records of the UK population available for scientific and commercial use, is not inherently evil – far from it – but its execution has been badly bungled. Here's how the government can regain our trust

http://www.theguardian.com/society/2014/feb/21/nhs-plan-share-medical-data-save-lives

Medical records rules broken, NHS admits http://www.bbc.co.uk/news/health-26329748

NHS data will not be sold to insurance companies, Jeremy Hunt says
Health secretary to provide assurance that confidential information will not be used for commercial insurance

http://www.theguardian.com/society/2014/feb/28/nhs-data-will-not-be-sold-insurance-companies-jeremy-hunt

Review to probe sale of NHS medical data
National audit of NHS medical data following concerns over sale of records for insurance purposes

http://www.telegraph.co.uk/health/nhs/10680969/Review-to-probe-sale-of-NHS-medical-data.html

Open access to data can break down barriers and empower patients
Projects that use patient data collaboratively and develop new technologies are helping tackle the impending NHS crisis

http://www.theguardian.com/healthcare-network/2014/mar/17/open-access-data-empower-patients

NHS data-sharing 'a no-brainer', says health chief
Head of Medical Research Council defends care.data scheme, which was delayed after doctors and patients raised concerns

http://www.theguardian.com/society/2014/mar/21/nhs-data-sharing-no-brainer-health-chief

Drugs companies buy NHS patient data, register reveals
Bayer, Baxter, AstraZeneca and Roche are among dozens of private firms sold information, the Health and Social Care Information Centre discloses

http://www.telegraph.co.uk/health/nhs/10743019/Drugs-companies-buy-NHS-patient-data-register-reveals.html

NHS blunders put millions of records at risk
NHS chiefs admit major breaches saw security of millions of patient records compromised

http://www.telegraph.co.uk/health/healthnews/10753001/NHS-blunders-put-millions-of-records-at-risk.html

Care.data to be piloted in GP practices before full rollout

http://www.pulsetoday.co.uk/your-practice/practice-topics/it/caredata-to-be-piloted-in-gp-practices-before-full-rollout/20006498.article#.U1zM7KImF3A

Ignorance of care quality is 'true scandal' facing NHS, warns health chief
The 'true scandal' facing the NHS is ignorance of the quality of care it provides due to the absence of a database of GP records, a health boss warns

http://www.telegraph.co.uk/health/nhs/10881782/Ignorance-of-care-quality-is-true-scandal-facing-NHS-warns-health-chief.html

Millions of NHS records sold to 178 private firms: And officials don't even know where details of 1.3m patients ended up
Dates of birth, postcodes and diagnoses sold to hundreds of private firms
Details of up to 1.3m patients went missing because no record was kept
Data is anonymous, but review found it was easy to deduce patient identity


http://www.dailymail.co.uk/health/article-2660800/Millions-NHS-records-sold-178-private-firms-And-officials-dont-know-details-1-3m-patients-ended-up.html#ixzz34z9HLuGf