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Re: NHS Data Sharing (13th Dec 12 at 10:16am UTC)
Patient data in the NHS
Find out what our panel of experts said about the future of patient data in the NHS, including boundaries of consent and the use of data for relevant trials

http://www.guardian.co.uk/healthcare-network-nihr-clinical-research-zone/patient-data-nhs-live-discussion-roundup
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Re: NHS Data Sharing (31st Dec 12 at 10:44pm UTC)
More than one in three people have had their medical details uploaded onto a central database accessible by healthcare professionals across the country, many without their knowledge, it has been claimed.

http://www.telegraph.co.uk/health/healthnews/9760563/One-in-three-have-online-medical-record-many-without-knowledge.html
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Re: NHS Data Sharing (15th Jan 13 at 11:01pm UTC)
Millions of confidential medical histories will be shared between hospitals and GPs, despite fears that patients’ privacy could be breached.

http://www.telegraph.co.uk/news/politics/9804402/Privacy-fears-as-Jeremy-Hunt-orders-health-records-to-be-shared-throughout-NHS.html
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Re: NHS Data Sharing (18th Jan 13 at 10:07am UTC)
Donated genetic data 'privacy risk' http://www.bbc.co.uk/news/health-21056647
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Re: NHS Data Sharing (19th Jan 13 at 11:46pm UTC)
http://www.pharmatimes.com/mobile/13-01-17/Hunt_unveils_IT_project_for_paperless_NHS.aspx

PharmaTimes - Hunt unveils IT project for paperless NHS
Selina McKee

Health secretary Jeremy Hunt has showcased ambitious plans for a paperless National Health Service by 2018, saving lives and the NHS a potential £4.4 billion a year.

In a speech to think-tank Policy Exchange last night, Hunt noted that patients should have compatible digital records so that their health information can be accessed anywhere in the health and social care system with just the touch of a button.

Under the plans, patients' medical records will be online by March 2015, and be part of a fully connected health and social care service by 2018.

The move comes with the publication of a study by Price Waterhouse Coopers into the better use information and technology, which found that the greater use of text messages, electronic prescribing and electronic patient records could boost patient care, free up health professionals to spend more time with patients, and save nearly £4.5 billion a year.

"The NHS cannot be the last man standing as the rest of the economy embraces the technology revolution," Hunt said, noting that it "is crazy that ambulance drivers cannot access a full medical history of someone they are picking up in an emergency – and that GPs and hospitals still struggle to share digital records".



However, for hospitals to make information digitally and securely available by 2014-15, the quality of information and data integration must be improved and this critical area of business has long been ignored, one expert claims.

Mikko Soirola, vice president of data integration specialist Liaison Technologies, said that while the "savings potential of going digital is undeniable", in order to release the maximum benefit the "data quality has to be of the highest order and data integration across the entire supply chain has to be sorted".



But, he points out, there are few NHS organisations which have a dedicated position of data manager. "Which means no one checks if organisational data is correct and accurate…The sad fact is that if you have poor data to work with from the start, you will never maximise your return or achieve best practice" .

Privacy fears

And critics of the move also fear that patients' privacy could be at risk.

"The Department of Health needs to be absolutely clear who will hold our medical records, who can access them and reassure patients that their privacy will not be destroyed in another NHS IT blunder," commented Nick Pickles, director of campaign group Big Brother Watch.

"There is a real risk that if patients aren't assured that this scheme is fully secure then people will stop sharing information with their doctor and that could be extremely dangerous for care," he warned.

Also, previous attempts at improving NHS IT have been disastrous; Labour's ill-fated programme crashed and burned in 2011 along with £6 billion of taxpayer's money.

Learning lessons

“Previous attempts to crack this became a top down project akin to building an aircraft carrier," the health secretary said, adding: "We need to learn those lessons – and in particular avoid the pitfalls of a hugely complex, centrally specified approach".

As such, under the coalition's plans, clinical commissioning groups will be able to design their own IT systems, as long as they fit with a national set of standards enabling them to communicate with each other.

Tim Kelsey, National Director for Patients and Information in the NHS Commissioning Board, has welcomed the "challenge to unleash the power of information and technology for patients and those who serve them".

"We are committed to transforming transparency and participation in the NHS - the digital data revolution is key to improving outcomes and putting patients and carers more in control," he said.
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Re: NHS Data Sharing (31st Jan 13 at 10:18am UTC)
Many hospitals not sharing crime data, audit shows http://www.bbc.co.uk/news/health-21266409
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Re: NHS Data Sharing (2nd Feb 13 at 10:13pm UTC)
Big brother to log your drinking habits and waist size as GPs are forced to hand over confidential records

http://www.dailymail.co.uk/news/article-2272166/Big-brother-log-drinking-habits-waist-size.html#ixzz2JmZlvBme

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Re: NHS Data Sharing (18th Feb 13 at 11:37am UTC)
Why is the NHS still using snail-mail?
Email between patients and doctors would be cheaper and quicker, so why isn't it being used, asks the Patient from Hell

http://www.guardian.co.uk/healthcare-network/2013/feb/18/nhs-letters-email
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Re: NHS Data Sharing (30th Mar 13 at 2:08am UTC)
Secret NHS plan to share personal records

http://www.telegraph.co.uk/health/healthnews/9960728/Secret-NHS-plan-to-share-personal-records.html
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Re: NHS Data Sharing (26th Apr 13 at 8:43pm UTC)
Data-sharing 'good for patients' http://www.bbc.co.uk/news/health-22309090
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Re: NHS Data Sharing (27th Apr 13 at 10:05pm UTC)
Patients to be given 'veto' over their data being shared from GP records

http://www.pulsetoday.co.uk/your-practice/practice-topics/it/patients-to-be-given-veto-over-their-data-being-shared-from-gp-records/20002754.article#.UXxLV0pIRg8
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Re: NHS Data Sharing (17th May 13 at 9:24pm UTC)
£140 buys private firms data on NHS patients
Bupa approved to access sensitive medical records as campaigners question patient consent for release

http://www.guardian.co.uk/technology/2013/may/17/private-firms-data-hospital-patients
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Re: NHS Data Sharing (14th Jun 13 at 8:59am UTC)
Doctors should be able to veto treatment data until 'happy' with it, say surgeons

http://www.telegraph.co.uk/health/healthnews/10120098/Doctors-should-be-able-to-veto-treament-data-until-happy-with-it-say-surgeons.html
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Re: NHS Data Sharing (14th Jun 13 at 9:23am UTC)
Name surgeons who block performance data - Jeremy Hunt http://www.bbc.co.uk/news/health-22899448
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Re: NHS Data Sharing (5th Jul 13 at 9:07am UTC)
Death data 'not good enough to spot poor surgeons' http://www.bbc.co.uk/news/health-23178379
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Re: NHS Data Sharing (10th Aug 13 at 9:53am UTC)
The 18,000 cancer care records lost every year: One in nine patient files missing

http://www.dailymail.co.uk/health/article-2387032/18-000-cancer-patients-medical-files-lost-year-suffer-humiliation-nurses-poll-finds.html#ixzz2bYgXZTjr

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Re: NHS Data Sharing (21st Aug 13 at 10:17am UTC)
Jeremy Hunt plans sale of confidential patient medical records to private firms

http://www.telegraph.co.uk/health/healthnews/10250585/Jeremy-Hunt-plans-sale-of-confidential-patient-medical-records-to-private-firms.html
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Re: NHS Data Sharing (18th Sep 13 at 8:43am UTC)
NHS IT system one of 'worst fiascos ever', say MPs http://www.bbc.co.uk/news/uk-politics-24130684
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Re: NHS Data Sharing (22nd Sep 13 at 10:49am UTC)
GPs threaten to boycott 'Big Brother' NHS database which would force them to send confidential patient records to private firms
General Practice Extraction Service (GPES) is pet project of Health Secretary Jeremy Hunt
GPs say NHS England has failed to tell patients about ‘care.data’ scheme or to promote it properly


http://www.dailymail.co.uk/news/article-2428211/GPs-threaten-boycott-Big-Brother-NHS-database.html#ixzz2fcLGlUpC
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Re: NHS Data Sharing (2nd Oct 13 at 9:09am UTC)
NHS Greater Glasgow and Clyde fails to fix IT problem http://www.bbc.co.uk/news/uk-scotland-glasgow-west-24361442
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